Barman-Aksӧzen shared her experience of guiding treatment research for her own ultra rare disorder, erythropoietic protoporphyria (EPP).

Since Blueprint Medicines’ inception over a decade ago, we have focused on advancing the understanding of the underlying ...

E.B. stands for epidermolysis bullosa, a disorder that causes the skin to tear and blister easily after a minor injury or ...

Colin Farrell has thanked the public for backing his charity marathon run for a friend with an agonising skin condition after ...

Plus, news about Astellas, Clover, ElevateBio, Monopar, Idorsia and Neurocrine Biosciences: Vera Therapeutics plans $300M offering: The California biotech is selling shares after ...

A group of dog owners is raising money for a clinical trial that's been described as a potential game changer for pups with a rare disease. "You can't help but fall in love with him he's got this zest ...

Billy LeBlanc, a popular YouTuber and the figurehead of the Bratayley family channel announced the devastating news of his ...

Colin Farrell and Emma Fogarty, who is Ireland's longest-surviving person battling the genetic condition epidermolysis ...

Colin Farrell's friend Emma Fogarty has epidermolysis bullosa, or EB, a rare skin disease. Farrell will run the Dublin ...

E.B. Awareness Week highlights rare skin disorder, local family share personal experiences ...